Tanner was born on February 25th of 2009. He was diagnosed when he was six days old. I often say that the day Tanner was diagnosed with Wolf-Hirschhorn Syndrome was the worst day of my life. I stand by that but for different reasons today than when the words first rolled off my tongue.
When we received his diagnosis my world was shattered that our baby boy was not "perfect". For months I cried and cried about what may lie ahead in our future. I analyzed every word that had come out of the geneticists mouth. I took it to heart and assumed everything she said was true. I didn't think Tanner would ever walk or talk. I stalked Tanner's every movement waiting for that first seizure that I knew would come someday. I figured I would have to do everything for him for the rest of his life and although I tried to forget it......the 34% death rate before the age of two haunted me everyday.
Yes, the day Tanner was diagnosed with Wolf-Hirschhorn Syndrome was the WORST day of my life. I think it always will be for this reason: every single day since then has been better. Some days I forget Tanner has Wolf-Hirschhorn Syndrome. He's always smiling at me and engaging me with those "wide set, bulging eyes" that are so darn beautiful. His "little to no personality" is quite entertaining as well. His "small stature" has allowed me to cuddle, hold and nurture him far longer than most mothers are able to without the typical two year old squirming out of your arms to explore. Every milestone is celebrated like the fourth of July because his "developmental delays" by definition said he may NEVER accomplish these things.
"Perfect"......my son, Tanner, is perfect. Maybe not in the genetics teams eyes and all of their books......but to me, our family and the people that love Tanner he is very much perfect.
So, judge me if you will for saying that March 3, 2009 was the worst day of my life. I personally am thankful that EVERY DAY HAS BEEN BETTER:)